[livingwith]

My husband was diagnosed last June with Lou Gherigs disease. Wow, we did not even know what that was at the time and never heard of it. It took almost a year and a half to get this diagnosis. It first started with food starting to taste funny (like crap) then dropping tools (doctor thought it was arthuritus), then he was getting dizzy. Finally we thought he had a stroke or something because his speach started to slurr. We went through several scopes, blood tests, scans. Then after just one...Read the full article

[MMyers]

My Husband has also been told that He has the gene of ALS. He went to get tested after His Brother was diagnosed with the disease in 2000 and His Mom passed away from ALS in 2006. What You are seeing is somewhat normal from what i am gathering.. My Husband at the moment has no symptoms but we both know that they can occur at anytime. He is more aware what to expect since His Mothers side of the Family carried the gene. This past Oct 2009 He went to Atlanta and had the gene testing done. Jan 2010 is when We got the results. There is a misconception about ALS. Many say IF this person or that person gets the disease then they are so sorry for that person. Once a person knows they carry the gene, there is no IF anymore it it WHEN do they start feeling symptoms. I feel very strongly that in my Husbands case that We live day by day and not make any long range plans. In Your case You have to do what feels right for You and Your Husband. If You stay working do it for Your own sanity *s*. I do not work outside of the Home so i am able to spend alot of time going to where my Husband works and just talking with Him when He has panic attacks. We all deal with this disease so differently and there is not a lot that can be said to do as each case is different. There is one thing i do encourage very strongly and that is to make sure You and Your Husbands Wills are completed and updated. You are in my prayers for the journey ahead for us both.